TIF Standards for Haemoglobinopathy Reference Centres
نویسندگان
چکیده
Haemoglobin disorders are hereditary, lifelong and characterised by the need for multifaceted management. The question of quality in meeting standards care that likely to bring best possible outcomes patients is a necessary consideration. concept reference centres supporting peripheral treatment formal networking relationship response real needs practical solution public health terms. In this report, team advisors Thalassaemia International Federation (TIF) attempts suggest set haemoglobinopathy centres, also based on founding principles TIF, aiming act as guideline its member associations professional collaborators. described herein can form basis an accreditation process serve guide those who would advocate improvement thalassaemia services.
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ژورنال
عنوان ژورنال: Thalassemia Reports
سال: 2022
ISSN: ['2039-4357', '2039-4365']
DOI: https://doi.org/10.3390/thalassrep13010002